16th June 2011 - Prayer of Thanks

Pheyntoin since it was adjusted on the 23rd May has kept Sarah stable and seizure free.

A Prayer of Thanks to God was given by our Minister in Church last Sunday, for this period of great health, and Sarah who is so often absent from Church was able to be with us there.

Life without seizures is so amazing, no hospital visits, no nursing routines at home e.g. who will feed, bath, dress, undress, give medicines, watch, care etc etc that has been so much part of our family routine for a long time.  Sarah is currently saying "I can do it myself!" most of the time.

Sarah is a play mate again for her younger sister Elmarie and this has brought such delight to both of them.

Sarah is calling Elmarie her best friend and Elmarie is proud of being able to make up good games for Sarah to follow (for her, its equivalent to having a younger sister follow after you!)

So its all wonderfully good to see.  Yes this is a light on for us all as a family and for Sarah a real quality of life.

Sarah has special needs and she has needs that a child her age would have grown past.  Her attention span is lower, and so demands a lot more attention. She struggles to cope with routines and people outside those she is used to i.e. school and home. Her reaction is often to be overactive or  show destructive behaviour when out of her routine. This is especially hard when her sisters have friends over and her behaviour is challenging.

Medications and seizure activity have accounted for a lot of Sarahs behaviour patterns so in this clearer period it is useful to know and assess just where Sarah is at in her all round development.

School this term has had lots of fun, outings and learning.  Its just great to be getting news of school from Sarah every day as she is able to recall and describe situations. 
A highlight this past few weeks has to be a whole afternoon play and have tea with her lovely friend Jessica. 
They both went to nursery and started school together and although Sarah had to leave mainstream they remain good friends.   A very precious friendship that lets Sarah be independant from us for a short time.

We will enjoy this period of seizure freedom for how ever long it will last.

We are praying, that while Sarah is in a period of good health, she will get the opportunity to go to the Epilepsy Centre in London again, so that she can have a full educational psychologist assessment.  This will give a clear picture of her learning and understanding capabilities.

At the moment she has been recommended for referal and so we wait the approval from the NHS Highland Trust.  Please pray for this.

Thanks again for all your prayers and join with us in thanksgiving to our Heavenly Father for this settled spell.