It has been a mixed day Sarah has had a lot of atypical absence seizures this is the type her new medication should be taking away but seems not. The side effects of it for her being subdued and not having to much life or interest is of concern to us.
How ever we tried to encourage a play time outside with her little sister Elmarie and she enjoyed making a home movie of herself, with Dad being the camera man of sorts!
Sarah managed a little food three times today.
It is hard that she needs everything done for her again as she has very poor tone mostly due to having so many atypical absences.
This is a week of waiting for change as her new anti epileptic medicine goes into her blood stream having had it at a higher dose over two weeks. Also we will be through week one of steroids. Sarah will need one to one care and as her night seizures seem to be more and longer we will be taking turns to sleep with her again, but thankful for our Monday and Tuesday nights our Nurse support is at home.
We give thanks for having Sarah home again, and for the love many people give to her.
We again give thanks for all the prayers and all the support to us as a family e,g. meals, phone calls ,sleep overs for the other girls all so thoughtful. Thank You all.
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