Just as our weather turned stormy so did our Sarah's settled spell turn.
Friday morning early morning seizures returned, and they increased as the weekend went on.
Her speech became slower, her co ordination decreased and her ability to fully function was much poorer again.
The feeling of disappointment hit us all.
Sunday Sarah became drolly and needed help with all functions, it didn't look good.
Sunday into Monday morning she had tonic seizures hourly. So it was no surprise this Monday morning that Sarah was not fully with it and showing signs of NCS again.
Sarah spent a good part of the day in Hospital but thanks to our efficient medical team her stay was short. Her bloods were checked and the results showed a decrease in the level of pheyntoin in her blood. This gave us hope as it could well be the reason for the return of her seizures. Her daily dose will be increased now and in the mean time she received a small dose of phenytoin IV. She was brave as usual but more so as her veins were proving hard to get a line into. MFR(local radio station) were on the Children's Ward today and spoke to Rona in the midst of this. They are supporting the Archie Foundation a fund to help revamp the whole Children's ward. After the Phenytoin was given we were allowed home.
We would say tonight there was already slight improvement and at least Sarah ate and drank with out help.
The phenytoin has to be so finely tuned, so we are praying that an increase in the dose will bring it back up to the therapeutic level in her body as it was at in the past weeks of stability.
No comments:
Post a Comment