Monday 4 June 2012

Good news on NCS - Early June 2012

Following on from her bad day, it was wonderful for Sarah to sleep 13 hours, what an answer to prayer as she woke up no next day having had no seizures over night and so much better!

Her speech was back and her co ordination so much better. She was not so pleased when I said you will have to stay at home with me today to rest.
With stability I was able to get her to her dentist appointment, where the dentist confirmed a sore mouth and a back molar cutting. This is a relief as its at least a reason for seizures as so often in the past cutting teeth or loosing them has triggered seizures!

Having had just one rescue medicine dose, sleeping so long and knowing there was teeth problems we held back on giving further rescue tablets to be able to avoid side effects ( its not easy to forget the awful agony of the side effects of the rescue medicine.)
We have been given anaesthetic spray for her sore gums which are suffering also as a result of a horrible side effect of her current anti-epileptic medicine. Its hard, a medicine helping her seizures yet the side effect causing pain that triggers another type of her seizures!!!!!

We are aware how quickly Sarah's seizures can come and so we continue to pray that her night seizures will stay away for a while to give Sarah an opportunity to regain strength and that her teeth will come through quick.
Thanks for keeping up and for your kind thoughts wishes and prayers

Ian, Rona and girls xxxx

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